Waterfall

To be given hope renders a fountain. To cautiously believe that my reset button can be pressed evokes a cascade of reactions; from disbelief to what do I do now? Where do I begin? What do I want to do with the rest of my life? I suddenly have choices and may no longer be relegated to a few specific things that won’t cause stress or aggravate a volatile disease process (if such exists).

These hints of what could be, while still settling in, are much like viewing the world from behind the curtain of a waterfall – at the back are familiar, slippery stonewalls, where comfort in a reclusive form has been my norm for years, simply due to inexhaustible symptoms plus being told this is the best it will be for you – your life will never be the same. Don’t exert yourself, avoid stress (like that’s possible), those repeated words and endless exhaustion eroded all my plans and dreams of living life as the gush of the unknown washed over and engulfed me.

However, I am meant to share my story – more importantly, to educate those affected by Ulcerative Colitis/Crohn’s Disease and give you a dose of reality. You too can find answers – you do not have to settle anymore!

Although I am not out of the woods with my treatment or symptoms, I will say that the mere act of penning my journey has been cathartic; a hypnotic solitude in knowing I can reach others with positive news and champion our cause since, for the first time in history, patients have a voice.

Recovering from 2012-13 flare – prednisone face!

2 comments

I am amazed by your transparency and your insights by using such a flowing story of your journey. Keep up the good work. There is POWER in words.

Yes, Ray, there is power in words. I appreciate your continued encouragement!

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