Did you know?

After diagnosis and before biologics you could see my ribs, I was very boney; as mentioned in an earlier post, I could put on and take off my size 2 skinny jeans without unbuttoning or unzipping them. If you search for pictures of cattle, sheep or goats infected with Johne’s Disease or MAP (mycobacterium avium subsp. paratuberculosis, the human equivalent of Johne’s), then you get a picture of the potential for extreme emaciation; MAP can cause Ulcerative Colitis and Crohn’s Disease!

To familiarize yourself with Johne’s Disease, I recommend this comprehensive website dedicated to education, research, testing and building awareness, Johne’s Information Center; this devastating disease can be found among ruminants globally and the many facets this pathogen takes in its quest to survive may surprise you. If you have cattle or other animals that may roam in herds this website is even more golden, providing guidance on how to protect yourself and your livestock.

My heart hurts for the suffering but especially those with Crohn’s, Colitis and/or MAP and animals suffering from Johne’s. Both are needless and we must advocate stopping the slow carnage. There are various ways to do this including spreading the word for awareness and supporting researchers, microbiologists, veterinarians, physicians and everyone else seeking to eradicate this infectious organism.

Did you know MAP might contribute to MS, Type 1 Diabetes, Parkinson’s, Hashimoto’s and other diseases? For more information visit this site Human Para Foundation chock full of info, this unparallelled website should be celebrated because it provides answers and hope to anyone with MAP!

I developed the first two of seven fistulae after beginning biologics, which “wasn’t supposed to happen.” If I had known about MAP then, this could’ve lead to a different outcome. Did you know MAP creates fistulae in some cases? The pathogen tunnels paths through tissue, which originate from the colon to various places within the body, or breaks through the skin. From my experience, once established this mycobacteria has free rein to do what it wants and where.

As mentioned in my last post, I was finally able to work again! However (have you come to expect these however’s?), I developed another bulging disc, which put me out of work, on top of missing work for the fistulae procedure. As you can imagine I lost my new job because this fast growing company needed my support daily, not when Crohn’s and Colitis decided to give me “a day off!”

Johne’s Information Center

Human Para Foundation

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